Rare Disease Report® to Participate in Rare Disease Day

“We love Rare Disease Day and being in attendance at the events in Washington on that day. And what makes the day even better for us is providing a means for those advocates to reach an audience they may not be reaching – clinicians.” – Jim Radke

Rare Disease Report®, which is the only rare disease media outlet with a clinician-based audience, will be participating in Rare Disease Day events, hosted by the Rare Disease Legislative Advocates (RDLA) on February 28, 2017, in Washington, D.C. In addition, Rare Disease Report, a website, weekly e-newsletter and quarterly publication, will be conducting interviews with patients and advocates in their portable video studio.

Rare Disease Report® assistant editor Andrew Black said “I am looking forward to this amazing event and being able to interview some of the rare disease community’s most active and caring advocates. By sharing their stories, we can help amplify their message.”

In making this announcement Rare Disease Report® Managing Editor James Radke, Ph.D. said, “We love Rare Disease Day and being in attendance at the events in Washington on that day. And what makes the day even better for us is providing a means for those advocates to reach an audience they may not be reaching –…

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